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My daughter, my eldest, my big little zebra was diagnosed with autism level 1 this week. Was it a shock to me? No, it was not. I’ve spent countless hours, days and weeks fighting for this diagnosis to happen. So, to finally get a diagnosis brought relief. Yet with this relief came fear and worry. […]

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I’ve been thinking a lot lately about the labels we have attached to us when we have a chronic physical or mental illness. They are powerful labels that can be associated with a lot of stigma, sadness or make you feel a little bit hopeless. I am trying to think of labels as something I ‘have’ […]

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Hi, I’m Roz, and I’m the artist behind North Mayo Fine Art. I’ve been creating art for most of my life, but have been an artist for 3 years. I might not have become an artist, had it not been for the fact that I became disabled, with multiple chronic illnesses, and became housebound. I […]

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I’m Jane Elizabeth Higgins. I was Jane Elizabeth Chandler until last year when I Married the gorgeous Mr Higgins, who loves and supports me through sickness and health. I am so happy to have found this beautiful community of Crafties. I can’t actually express in words the emotions I felt when I read the welcome […]

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I’m lucky to be a carer for two amazing people!!! My son and my Mum! My son was diagnosed with Aspergers/ High functioning Autism, at age 7. We have had a tough old road, now he is 17, done his GCSE’s and is now at college! Safe to say I am one proud Mum! In […]

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HOW TO style HAIR with minimal energy and so we can save energy for the important stuff! (I know hair loss is very common with Chronic Illness. In fact, I lost 2/3rd of my hair a few years back and had to cut it all off. Please do not be discouraged if you are experiencing this, […]

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Below is an email I sent this morning to a specialist I saw last year. It’s not professional. It’s not the right way to go about things. But it’s real. It’s my life. It’s the level of desperate I’m now at. I’m not sharing this for sympathy. I’m sharing it to highlight the thousands of […]

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In the last few months my levels of pain and exhaustion have hit a whole new high. This has left me pretty much bedbound most days. Then awake and restless at night. Alongside all that, my Gastroparesis has flared, meaning I’m nauseous almost all the time. My stomach feels full and bloated and eating, or […]

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Our story begins when Jaymee became a mother, at the age of twenty. Soon after she was diagnosed with Postnatal Depression, a fairly common problem that many mothers face. As is so often the case, Jaymee was given antidepressants and sent on her way. But Jaymee knew deep down something wasn’t right. Months passed, and […]

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Throughout the world there are thousands upon thousands of people living below the radar. Struggling just to exist, let alone be ‘functioning’ members of the community. These people, people like me, live with disability. Together we form a huge portion of the global community, but with so few of us in the public eye it’s […]

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Hello there, this thing here about my story turned into the screen play for a movie. If you want to skip to the last paragraph, I won’t be offended (I won’t know either, which helps). After struggling since childhood (I thought I didn’t have a valid place in the world, that I was an outsider […]

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I remember having a dream as a small child. I was with a circle of adults around a fire and there was something that they were not telling me. I awoke feeling cross and very frustrated and the memory of the dream lingered… As a young, able-bodied adult, I left home and did a degree […]

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One of the hardest aspects of being disabled and chronically ill is not dealing with the conditions themselves, but trying to parent two young kids while also managing my EDS, Fibro, CRPS, POTS, OH, etc. As any parent knows, parenting itself is hard but add in disabilities and chronic illness of either a parent or […]

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Here’s my story (reposted from My Website Mommy Can’t Dance) Spanish-style music was playing in the background. It was unusually hot for October, but I could feel a slight breeze on my cheek. The nerves in my limbs were twitching like they wanted to get up and run yet felt like they were being held […]

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It all started with a dream. I grew up doing musical theatre. Let me rephrase that. I grew up thinking my life was a musical. Call it the “theatre bug”, call me a “drama queen” or a great big ham – I lived for the world of the stage. For me, singing and acting were […]

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I’ve always loved finding about about myself. I was a shy child with hardly any dress sense (though very sensitive to irritating clothes). I matured late, have always been something of a tomboy and absolutely love stories, be it in books, in films or making them up with friends. I had a career as a […]

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