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Being a Carer – how hard can that be?

Being a carer for husband is exhausting

You know what it’s like to be a carer. Or at least you think you do. It’s just looking after someone else, how hard can that be? … RIGHT.

Well just take a moment to sit and think. Caring is not a choice it’s a lifestyle. You need to have all your wits about you just to make it through the dark days. Not just yours but who you are caring for too. Those moments. NO, every moment affects you.

You think caring sounds easy. You think caring means sitting on your bum having a lovely life. Being paid less then you can ever dream to live on. While society deems you as a lazy person because all you do is care.

Take a little time to step into my shoes. My life is hard. For disabilities and mental health there are days out. Rest bite. Care in the community. Cheap day tickets to places. What do carers get. NOTHING.

I’m not complaining. I love who I care for but their dark days are also my dark days and shock horror I get bad days too. I have thoughts, feelings, dreams, but all these are on stand by because the person I care for needs help every day.

I don’t get time off. I don’t get to follow my dreams. I don’t even get ask how I am coping. What I may need. These all come second place. These are unimportant. Just because I care for someone. Those persons needs become more important then my own.

If you’re a Carer you sign over your life. You live for two people and then you wonder why you are tired all the time. It’s almost impossible to administer self care because bad days are bad days and they need fixing. You’re the carer so it’s now your duty to fix them.

You can’t go out alone because you can’t leave who you care for unattended in case something happens to them and then you’re filled with guilt for not doing your duty.

It’s easy to pass judgement. It’s easy to look like ‘I’ve got this’ and most of the time I have. Most of the time life ticks by nicely because it’s been planned one week in advance.

BUT
Sometimes I cry myself to sleep at night because I feel like I have no freedom. I feel trapped because my dreams have to come second. I feel emotionally drained from propping up those that need me. I feel empty because I have given all the love I can give but there’s still a hand asking for more.

I shy away from activities because I’m too tired to participate. I hide from the world because I find it hard to be true to who I am. The list of TO DO’s keeps on growing. I don’t have time to make friends because I’m too busy making others happy.

Caring can be an isolated life. People forget you. People misunderstand you. People can hurt you with comments. BUT we FIGHT for not just ourselves or those we care for but misunderstood carers everywhere.

If it’s one thing we have in common it’s that we actually CARE. So please be good to your carer. They are there for you but be mindful that they also need time to be themselves.

Thank you for reading. Keep being strong <3 xx

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Caring in Chaos

Caring carer caregivers

I’m lucky to be a carer for two amazing people!!! My son and my Mum!

My son was diagnosed with Aspergers/ High functioning Autism, at age 7. We have had a tough old road, now he is 17, done his GCSE’s and is now at college! Safe to say I am one proud Mum!

In May 2015 I became carer for my Mum. She has chronic Arthritis both Rheumatoid and Osteo, which means she needs lots of help. She had to take early retirement and move in with me and my son.

I took up embroidery and cross stitch originally to do something creative.

Its helps take my mind off our crazy merry go round life of hospital appointments, meetings, therapy and general house stuff.

I suffer with Depression and PTSD, due to a previous abusive relationship. So stitching helps and keeps me sane, or not as the case may be 🙂

Autism spectrum top sweatshirt hoodie
Autism spectrum hoodie

For a long time I had thought about running my own business, but just didn’t know what to do. One day Mum saw and advert for a embroidery machine, “you could do that!” she said. So, along came this huge machine which initially I was terrified of! (I had only done hand embroidery up to that point!!). Luckily my computer whizz and all things technical son came to the rescue!

I had had the machine for a month and just looked at it in awe! Half term was all that was needed, by the end of the week he had machine embroidery sussed, taught me and so my learning curve began!

Eventually after several months I braved it and in January of this year (2016) I jumped in. Mum and my boy love the things I make and look forward to seeing the new designs and products, Mum especially as she gets to keep the seconds!

So, here I am, self-employed and loving every minute!

VISIT MY SHOP

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