Mini Cart

HOW TO style HAIR with minimal energy and so we can save energy for the important stuff! (I know hair loss is very common with Chronic Illness. In fact, I lost 2/3rd of my hair a few years back and had to cut it all off. Please do not be discouraged if you are experiencing this, […]

549 total views, 3 views today

Continue Reading

In the last few months my levels of pain and exhaustion have hit a whole new high. This has left me pretty much bedbound most days. Then awake and restless at night. Alongside all that, my Gastroparesis has flared, meaning I’m nauseous almost all the time. My stomach feels full and bloated and eating, or […]

318 total views, no views today

Continue Reading

I remember having a dream as a small child. I was with a circle of adults around a fire and there was something that they were not telling me. I awoke feeling cross and very frustrated and the memory of the dream lingered… As a young, able-bodied adult, I left home and did a degree […]

489 total views, 3 views today

Continue Reading

One of the hardest aspects of being disabled and chronically ill is not dealing with the conditions themselves, but trying to parent two young kids while also managing my EDS, Fibro, CRPS, POTS, OH, etc. As any parent knows, parenting itself is hard but add in disabilities and chronic illness of either a parent or […]

462 total views, no views today

Continue Reading

Here’s my story (reposted from My Website Mommy Can’t Dance) Spanish-style music was playing in the background. It was unusually hot for October, but I could feel a slight breeze on my cheek. The nerves in my limbs were twitching like they wanted to get up and run yet felt like they were being held […]

147 total views, 2 views today

Continue Reading

I’ve always loved finding about about myself. I was a shy child with hardly any dress sense (though very sensitive to irritating clothes). I matured late, have always been something of a tomboy and absolutely love stories, be it in books, in films or making them up with friends. I had a career as a […]

145 total views, no views today

Continue Reading

Ever since I was little, I’ve wanted to do two things: be a writer, and work with animals. At one point I wanted to be a vet (even though I don’t particularly like the sight of blood), then I wanted to go into animal conservation. I’ve always loved the idea of working at a zoo. […]

153 total views, no views today

Continue Reading

It has been said that I’m just constantly looking for new diagnosis. That I want to be ‘more ill’. I suppose, in a way, this is partially true. I am searching for another diagnosis. Maybe more than one. In fact, I’m devoting a hell of a lot of my life to it. But I don’t […]

114 total views, no views today

Continue Reading

Hi! I’m Hannah Reimers. I’m a 24-year-old geek who loves Disney World, penguins, my cat Buttercup and my two pet guinea pigs. I also happen to be a five-year Kidney Transplant Survivor and have recently been diagnosed with several other chronic illnesses, including POTS (Postural Orthostatic Tachycardia Syndrome) and Dysautonomia. 

As little kids, my brother […]

456 total views, 3 views today

Continue Reading

A lifetime ago I was a young and energetic (ish) uni student. I studied Surface Pattern Design and had a summer internship set up with Emma Bridgewater. I was going places. I knew my path. It involved graduating from my course and speeding off on my exciting roller coaster of a career. I’d continue to […]

417 total views, 3 views today

Continue Reading

I often read blogs about ‘What not to say to the chronically ill.’ On the whole I do think these are helpful for people who want to remain a good friend to those of us who have been blighted with these kinds of issues. (Huge credit to you for trying!! We know we aren’t the […]

363 total views, no views today

Continue Reading

I’m getting really annoyed with how ‘PC’ the world is becoming, particularly in reference to disability. I am disabled, so I honestly think I’m entitled to a view here. The way we speak of things these days has become so much about not causing offence, that terminology has just become ridiculous. For example, the other […]

306 total views, no views today

Continue Reading

There is a place between asleep and awake. A place where you’re still dreaming, but acutely aware of things going on around you. The day to day noises of home trickle into your psyche, your senses are stirring. You can smell the world around you, and feel the breeze from the window. But you’re not […]

309 total views, no views today

Continue Reading

One of my conditions is POTS. It stands for Postural Orthostatic Tachycardia Syndrome. Even though there’s thousands of us POTSies out there, it’s still a relatively unknown condition that’s difficult to diagnose. If you have a friend or relative with POTS you may choose to do some online research on their condition so you can […]

372 total views, no views today

Continue Reading