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How being a Carer meant I discovered my creativity

Carer discovered creative crafting online craft supplies shop

My name is Lucy and I was introduced to Conscious Crafties by the amazing Karen Thomas (what a fantastic job she is doing, running this website and shouting out for fellow chronic creatives, I think its fab). I don’t have a chronic illness myself, and my story has developed over the last 4 years after losing my mum and then caring for my dad. Which at times I loved and other times felt the drain, the drain of being his emotional rock and making sure his wellbeing was top of my agenda. This then put pressure on my own wellbeing and family. But I loved him and wouldn’t change anything I helped him with, and like they say, and I’m a big believer of….every cloud has a silver lining! From this difficult time in my life I learnt to find my escape and my inner peace, this came in the form of sewing. I sewed at every spare minute I could find and quickly started making for friends and family and as these requests grew I launched my small business Madebylucy that I run from Facebook and Instagram.

This really took off and I was finding such joy making gorgeous cushions and bunting and a whole host of other handmade goodies for others. Hosting Madebylucy parties in people’s homes and attending craft fairs and school fetes.

Then after losing my dad I felt that I would like to share this passion with others and get more people creating and using craft as an escape, and to meet new people, helping them do something that they thought they couldn’t possibly do. So I set up an evening sewing group, a relaxed informal group that would meet weekly, and from posting on my Facebook page an item that we would be making all people had to do was turn up. This has proven really popular and so I expanded further. I now also run an online sewing and craft supplies shop to help people find affordable, fun and inspirational products to give people a chance to have a go, buy from a person they may know, and from one that has a love for the products and uses them in their own work. (AKA ME!)

My online shop is my real passion that with my sewing group and my desire to grow my sewing classes to encourage more people to have a go. I am looking to hold these in my local community, using community buildings that are easy to get to and that don’t feel too daunting to attend.

birdie buttons
Birdie Buttons

Well that’s my story so far and I am super excited about all my future plans I have, and would equally love for you to visit my Instagram page to see what I’m up to or have a browse in my online shop at Ribbon and Thread maybe you’ll come across something gorgeous you just can’t live without! ?

If you’d like to follow me even more, then I have a monthly newsletter that I ping into people’s inboxes at the end of each month. I include a simple to tutorial to have a go at, and share news from the month and sometimes have offers and special discounts for subscribers.

You can find the link on the Ribbon and Thread website.

Thanks for reading my intro and I have been enjoying reading through the other Blogs on the website, such great work going on and in such a supportive community.

Look forwarding to sharing more with you, Thank for the invite Karen.

Love Lucy xx

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Caring is a full time job

Being a carer for your partner

I have never written a blog before and I am not all that good at writing about who I am or how I feel. Just lately I have felt that I should give it a go and reach out to people. Caring can be a lonely job. I get sick of people telling me it’s not a REAL job and that I should go to work and stop claiming tax payers money.

I care for my husband who was first diagnosed with Epilepsy 10 years ago. This is how it all started. He had to give up work because his fits got a lot worse. He was a hazard in the work place. It was worsened by the fact that he had an accident and broke his neck. He’s lucky to be alive. I love him so much that I am thankful he is still in the land of the living. His neck is crumbled and the gravel as we call it pushes on nerve endings which caused his fits to get worse.

While going through the system and trying to work out what was the cause, he was diagnosed with Schizophrenia. I have always taken his mood swings as a quirk and neither of us knew he had a mental disability. It opened our eyes to how much can be hidden under the surface.

Giving up work for him caused a great depression. He’s never been the same. With the system treating us the way it has it has caused anxiety and panic attacks so now talking to strangers and going to new places is a challenge for us.

Life can never be the same. So YES, I am just a carer but I don’t get time off. I don’t get holiday pay. I don’t get any support from anywhere and I am left to rely on my own decision making to what is best for us. I don’t have time to be sick. I am needed every minute of the day. I wish I could go to work and work nine to five. I would surly make more money and possibly have a more comfortable life.

I didn’t choose for this to happen. I’m not just sat here on my backside doing nothing all day like people seem to think I am. It’s hard work. Maybe not physically every day but mentally every second. Every time he has a seizure he could die. If you love someone just take a moment to think how that feels. He has at least two a day on a bad month. There is nothing I can do but sit by his side and pray he pulls through.

So no, I don’t have a title, a posh house or children. I gave up all my dreams to be by his side everyday. Love is the foundation of my life. My gift is the days I get to see him smile without pain.

I craft to keep my sanity. I love to create. I love to see people smile and I think LOVE is the most cherished gift we can share with one another. It’s FREE and it changes lives.

So next time someone says they are a carer, take a moment to realise they give up their lives for others happiness. Give them some supportive encouragement. I know we all sure could use it.

Thank you for taking the time to read this. Much love to you all. xx

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From Private Detective to Carer and Artist

Dog pastel portrait, Bob Ashford

PetsPortraits4u : BobzzartAs a young man I trained for 5 years as a Ladies and Gents hairstylist in Leicester. My hobbies were fishing and Martial arts, i studied the Chinese martial art of Gung Fu and attained a black belt 3rd dan. After a few years I found myself working in Germany which I loved and my wife and children all joined me for a few years. It was on one of the journey’s to Germany that I first became aware of my neck problem, suffering terrific muscle spasms in my neck and shoulders, this continued for many years and the pain levels grew, on our return to England I had many hospital appointments, a CT scan and the diagnosis was “hot spots and irregularities in the C spine” (they gave really detailed diagnosis in the 70’s!). My problem was later diagnosed as Spondylosis or Spondylitis i can’t recall which! I was given Tramadol an opiate based pain killer and other pain relief which helped but did not take away all of the pain.

As the years went by the pain became stronger and ever present as it still is today, I recall myself sitting and crying in pain with my wife’s arms around me on many an evening after I finished work. By this time I had started two new companies away from hairdressing, one a Private Detective Agency the other a Security Company and was working 14/16 hours a day, fortunately I must have a strong constitution as I was always able to go to work and work through or in spite of the pain.

Dog Pastel Portrait, PetsPortraits4u
Dog Pastel Portrait
PetsPortraits4u

I spent several thousands of pounds over the years looking for alternative pain relief, having tried all the obvious, I went for energy healing and did find some relief and at about this time I also found a magic masseuse called Suzanne who like many are, was not afraid to go in deep, she was able to break up the tightly knotted muscles in my neck and shoulder after about a year of weekly visits, this allowed me to actually turn my neck a little from side to side after many years of not being able to, over the next few years my pain slowly went down a rung or two thanks to the healing and the marvellous masseuse I had found.
Having had “some relief” from pain for the first time in many many years I though that I could perhaps also help others that suffered with chronic pain and trained in Tera Mai Reiki Seichem becoming a Tera Mai Reiki Seichem Master and also as a Reconnective healing practitioner, through which I was over the years, able to give relief to many other chronic pain sufferers (but not myself!) mainly using Reconnective Healing energies which seemed more effective than Reiki.

 

Cat Pastel Portrait, PetsPortraits4u
Cat Pastel Portrait
PetsPortraits4u

In my retirement and still in pain 24/7 (and still something of a workaholic!) I caught up with an old school friend on friends reunited, she told me that she had MS of which I knew nothing, some years after this her husband passed away and some months later I was reasonably close to North Wales and arranged to meet with my friend from my school days for a meal, we got on well and I began to learn a little about MS. I started to visit her to help out on occasional weekends and at times when she had multiple medical appointments and seeing what she went through to be able to carry out the simplest little task really had me in awe of her single minded determination, the help visits became more regular and now I am her main carer, staying for perhaps a couple of weeks, enabling her to do the things she enjoys and get regular exercise sessions at the gym, then having a few days break before beginning again.

My friend actually classes herself as lucky, because although she has MS she suffers no pain, lots of other difficulties but no pain for which she is very grateful (but how anyone with MS can consider themselves lucky I don’t know) she has lost the use of her left arm and left leg, and struggles to manage even the simplest task, she has been a yoga teacher for over 30 years and still teaches from her wheel chair having adapted many exercises for chair bound people, she has taken over 700 yoga classes at the Neuro Therapy Centre near Chester and does everything she can to enable her to live an ordinary life. My heart often goes out to her as I see her struggle with a task, but I have now learnt the things that I must let her do herself despite how long it takes her or how difficult it is for her, it’s hard to watch sometimes knowing that I can do it for her, but she needs to do it herself, that was the most difficult thing for me to learn as a carer.

Horse Pastel Portrait, PetsPortraits4u
Horse Pastel Portrait
PetsPortraits4u

I find it very rewarding that I am now able to make life an awful lot easier for her, and enable her to live a normal (ish) life. I have free run of the kitchen which is great! I’m even allowed to do the washing up, although she says she occasionally has to re wash items!! It’s a man thing how we just leave an item with a stain or tiny bit of food on that a woman’s radar spots from 100 yards and we can’t see from six inches!

Anyway I have missed a bit out as before re meeting with my friend after many years, my masseuse told me on several occasions to ask my Doctor to test me for Fibromyalgia, when I finally got round to it I was given a positive diagnosis which explains all of the additional pain I have been getting over the last few years and the horrible tiredness and lack of energy, waking up feeling like a soggy sack, trying to remember what was a dream that you thought you had. It’s known as ‘Fibro Fog’ which is really weird sometimes, so caring for my friend although very difficult at times (as she really does not understand what pain is and why I can be so down and useless one day and ok another!) but it keeps me busy and I get an awful lot of satisfaction from being able to make her life easier, despite having lost the use of her left leg and arm she is always happy, cheerful and smiling. I find it amazing the way she copes with her disability and (most days) really enjoy being there for her.

 

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